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Twisting Limbs
On Sunday afternoon my ‘good leg’ spasmed for the first time. I choose to simply ignore this, as I was having lots of spasms and seizures as it was. Other than having the odd spasms in a toe or two...
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Dystonia: Its a bit of a roller-coaster, would you scream or enjoy the ride?
In life everyone has their own hopes, dreams, demons and struggles. We each suffer and achieve in situations others would not. None of us, are the same, yet we all judge each other and ourselves...
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Upcoming Hospital Admittance
On Tuesday I wrote an email to my consultant, explaining that now my whole body was being affected by my dystonia and that I no longer knew what I was expected to do. I have tried to bring a number of...
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What caused my Dystonia?
Since Dystonia started affecting me nine months ago, I have often asked what caused it? I have accepted the fact that I have Dystonia, and why it is me that has it is no longer important to me. What...
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Life is a Lottery
I love this quote, and for me it rings true, I may only be at the beginning of my storm but I am already a stronger person for it. It can be applied to anyone and everyone as we each go through our own...
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TENS Machine in action
This video will show you how I use a TENS machine to counteract the spasms. By placing the pads on my arm and putting the TENS machine on full power it causes the relaxed muscles to contract, which in...
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Bring It On!
Yesterday afternoon I collapsed outside of my house and started having Non Epileptic seizures and Dystonic spasms. As I was not regaining consciousness I was rushed by ambulance (with blues and twos...
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Medication side effects
Normally I don’t really get any side effects to medication. With one of my medications, called Gabapentin, I find that for about 24 to 48 hours after upping the dosage I am a bit of hormonal wreck, but...
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Dystonia Awareness Week!
Dystonia Awareness Week is fast approaching, it runs from Saturday 4th May to Sunday 12th May. Last year my mum, step dad and I ran a 5k fun run up in London and raised over £700 for the Dystonia...
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The Go Blue Movement
A little while ago a lovely woman called Rebecca Sharp who lives in America dyed a section of her blue to raise awareness for Dystonia (her father suffers from the condition). I thought this was a...
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